Retired NYPD Officer’s Family Needs Help Saving Son With DMD
When Michael Capolongo was about 4 years old, his parents Robert, a retired NYPD sergeant, and Theresa, a NICU nurse, noticed that he complained of leg pain while running around and playing with his friends on the playground.
At first, Michael’s pediatrician told them that it was most likely nothing that they would need to worry about. But after learning of the results of a blood test Michael was diagnosed with Duchenne muscular dystrophy. DMD is a rare progressive muscle disease.
In the years that followed Michael’s diagnosis, his family established Michael’s Cause. Michael’s Cause is a nonprofit dedicated to helping families affected by DMD and raising money to fund research efforts.
In support of Muscular Dystrophy Awareness Month in September, the Capolongo family is sharing their story to help build broader awareness of this devastating disease and the urgent need for treatment options.
Related: September is Suicide Prevention Month
What is DMD?
DMD is a rare genetic disorder characterized by progressive muscle damage and weakness. It primarily affects males, occurring in about 1 in every 3,500-6,000 male births worldwide. Children are usually diagnosed between the ages of 2 and 5 and symptoms usually progress and worsen between the ages of 8 and 12.
People with DMD become wheelchair-bound and require special assistance with many routine daily tasks such as brushing their teeth, washing their hair or opening a door. Eventually, the heart and respiratory muscles are also affected, significantly shortening life expectancy.
Michael recently graduated high school. He spends much of his time in doctor’s offices and undergoing physical, electro, and aqua therapies. However, he still makes time for his favorite hobbies such as sports, cooking, and spending quality time with his family and friends.
Michael also attends nearly every event held by Michael’s Cause to fight DMD. Since the nonprofit was founded in 2011, their organization has raised more than $3 million, which has helped many families impacted by DMD get wheelchair-accessible vans, air conditioning units, and other supportive equipment, in addition to funding critical research efforts.
Their goal is simple, to save their son’s life and the lives of others afflicted with this disease.
Can you help?
Sunday, September 22nd is the 12th annual Michael’s Cause Step for a Cure 5k Run & Walk in Staten Island, NY.
Please participate, donate, or get more information click here.