Five years ago, South Brunswick residents Lynn and Ray Maiorano reached out to us and expressed interest in holding a kickball tournament to benefit our son Ray, who needed medical equipment that was not covered by insurance. It was a success and they offered to hold it annually. This year’s 5th Annual Kickball Tournament will be held on September 22nd at Rowland Park in South Brunswick. We are hoping you will want to be part of this fundraiser and have some fun playing kickball while helping Ray!
Ray was born on October 17, 2008 and on March 30, 2009 was diagnosed with Spinal Muscular Atrophy (SMA), an incurable and terminal genetic disease. The average infant diagnosed with SMA lives to 2. Ray and our lives were forever changed on that day.
Today, Ray is doing well relative to the SMA diagnosis and so many people have been there for Ray and us. Thanks to the support from the annual kickball tournament we have been able to provide a life for Ray that we could not have dreamed of. We have been able to purchase the medical equipment Ray needed and we have been able to send him to various therapies that insurance will not pay for.
Ray is an amazing young man who doesn’t let SMA get in the way of living life to the fullest. SMA has not affected his spirit nor his happiness. He loves to spend time with family, play with his friends, and play Miracle League baseball. He likes to cook, bake, paint and go on all kinds of trips. We are always amazed at how Ray continues to fight SMA, live with a huge passion for life and touch so many people. He has an amazing attitude, smile and twinkle in his eyes! You can also see lots of photos of Ray and read about his adventures on his website: www.rayfantel.com.