On Sunday, June 25, 2017, the Cure SMA North Jersey Chapter will host the 2017 North Brunswick Walk-n-Roll from 9:00 am – 1:00 pm.
All proceeds from the event will benefit Cure SMA, a non-profit organization working to fund the research that is necessary to further develop treatment and, more importantly, a cure for spinal muscular atrophy.
The walk will be hosted at the North Brunswick Community Park and will include a one-mile walk route with an option for a longer 3-mile walk around the entire park, refreshments, light snacks, live entertainment, and kid-friendly games. This event would not be possible without the support of our guests, donors, and sponsors.
SMA is the number one genetic cause of death for infants, and 1 in 50 people carry the genetic mutation that causes SMA. But even so, many people are not familiar with SMA. Thanks to the Cure SMA community, that is changing.
The goal of Cure SMA’s North Brunswick Walk-n-Roll is to raise funds and awareness for SMA, and bring together those who are affected by the disease, along with friends and supporters. We invite you to join us in our second year to take part in a night full of memories, good times, and most importantly, hope.
The registration fee for the walk is $25 for adults (18+), $15 for children (6-17) and there is no fee for children under 5 and SMA affected individuals. To register for the walk, sponsor, or donate please visit events.curesma.org/2017NJWalk.
In December 2016, the FDA announced its approval of the first ever approved therapy for SMA. We are thrilled to see our community’s efforts culminate the approval of Spinraza™: not only the first-ever approved treatment for this disease, but also the one that addresses the underlying genetic cause of SMA. This has been a story of all groups – families, researchers, companies and the FDA – working together as one community to reach this amazing milestone.
About Cure SMA
Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA)—a disease that takes away a person’s ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.
Since 1984, we’ve directed and invested in comprehensive research that has shaped the scientific community’s understanding of SMA. We are currently on the verge of breakthroughs in treatment that will strengthen our children’s bodies, extend life, and lead to a cure.
We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options—and until we have a cure, we’ll do everything we can to support children and families affected by the disease.
Learn more about how you can help us reach a cure at www.cureSMA.org.
North Brunswick Community Park
2051 US 130
North Brunswick Township, NJ 08902